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Items by acollage

  • Birthday Worries

    —Autism Watch: 2007

    This last week, we finally decided what to do for BB’s birthday. He had grand plans, but with an impending cross-country move, we’re watching our budget. We also aren’t sure he’ll have enough kids come to make a pizza-parlor/game type of party, so we decided to go back to our [...]
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    Posted: November 21, 2009, 7:17pm EST
    by acollage

  • Another Dentist Appointment Completed

    —Autism Watch: 2007

    Number of comments: 2
    Today little dude had what is hopefully his last ‘work’ appointment…you know, where work outside of the normal cleaning and checkup gets done. I had to do this one on my own, since I “HAD THE DAY OFF.” Notice those words in caps -  apparently they mean that today is [...]
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    Posted: November 09, 2009, 10:11pm EST
    by acollage

  • Sharing in the Autism Community: Really?

    —Autism Watch: 2007

    When my son was dx’d initially, online communities saved me. My husband was in serious denial, and I didn’t know anyone offline that had any experience with autism, so I spent hours seeking out help, support, information, anything. I was one of those people who knew nothing about ASDs, as [...]
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    Posted: November 07, 2009, 5:32pm EST
    by acollage

  • Where to Begin?

    —Autism Watch: 2007

    Swine flu. It kicks your butt, and that of your entire family. No more than any other flu, and certainly not worth the vaccine, but nonetheless, it not only kicks your butt but it kicks it to the curb four houses down, into the gutter, through the sewer and out [...]
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    Posted: November 04, 2009, 11:13pm EST
    by acollage

  • Our Responsibility is to Our Kids, and No One Else

    —Autism Watch: 2007

    Number of comments: 2
    I haven’t blogged recently — busy (like everyone else), migraines, dd having seizures, sick kids, and in general, just not sure what to say. I don’t want a blog full of only rants about how bad my neighborhood is, how mean people are, and how tired I am of being afraid [...]
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    Posted: October 01, 2009, 2:19pm EDT
    by acollage

  • Dreading the Blog

    —Autism Watch: 2007

    Number of comments: 3
    I guess there’s no other way to put it politely. I’ve been avoiding the blog. I deal with autism all day every day, in some aspect or another, and lately, when I have a spare minute, the last thing I feel like doing is blogging about it. More autism? No [...]
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    Posted: September 13, 2009, 8:37pm EDT
    by acollage

  • What to say?

    —Autism Watch: 2007

    This last week is hard to talk about. I’m not even sure now, after a couple of glasses of wine, what to say. Ds has been getting picked on by a family of kids in the neighborhood, and we’ve asked mom to keep them home. Ha. That would require getting [...]
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    Posted: August 30, 2009, 11:14pm EDT
    by acollage

  • Mom, I Have No Friends!

    —Autism Watch: 2007

    Number of comments: 2
    How do you teach your kid that yes, other kids are mean? How do you even begin to acknowledge to yourself that yes, other kids are meaner than you can imagine? I know, in the scheme of things, focusing on this is weird. But, when it’s a daily issue in your [...]
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    Posted: August 22, 2009, 6:57pm EDT
    by acollage

  • Just SO Tired of It.

    —Autism Watch: 2007

    Number of comments: 1
    Tonight, a neighbor lady yelled at my son. Again. No, this isn’t the same lady that I had to confront a few weeks back for telling another boy not to play with my son. This lady, she has only smaller children and no autism experience, and apparently she feels that [...]
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    Posted: August 14, 2009, 1:17am EDT
    by acollage

  • Nope, still not better today

    —Autism Watch: 2007

    Number of comments: 1
    Yesterday morning, I woke up to a broken coffeemaker. Hot coffee (if you can call it that) pouring out the spout of the dispenser onto my counter. Too weak to put in a cup, since the water wasn’t in with the grounds long enough to brew, so I had to [...]
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    Posted: August 11, 2009, 4:18pm EDT
    by acollage

  • And things were going so good!

    —Autism Watch: 2007

    Sometimes, BB’s moods can literally change as fast as you can flick a switch..minus the switch. Things seem good, he seems compliant, and you’re able to relax. Then WHAM, it hits. The mood shift. Not sure what brought it on tonight. He’d been testy all afternoon, easily riled but in a [...]
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    Posted: August 11, 2009, 1:10am EDT
    by acollage

  • What a Coincidence!

    —Autism Watch: 2007

    To me, it’s always such a remarkable coincidence that when my son shows up on the front yard of any of the kids in the neighborhood, they suddenly have to go inside for dinner…go clean their room…go dig up the bodies in the backyard. Okay, so that last one was [...]
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    Posted: August 07, 2009, 11:10pm EDT
    by acollage

  • Sometimes, it isn’t as bad as you think!

    —Autism Watch: 2007

    Well, after learning that our lovely (choke, gag) state can no longer afford to pay for social help for autistic kids, I listened to BB worry about visiting school this morning to meet his new teacher. I’ve been hesitant about starting a new year — not because of the teacher, [...]
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    Posted: August 07, 2009, 2:01am EDT
    by acollage

  • Cryin’ In My Coat

    —Autism Watch: 2007

    Number of comments: 2
    So it’s not cryin’ in his beer, but it was pretty sad to see nonetheless. And it was actually his dad’s coat. As I shared earlier this week, daddy’s on a business trip out-of-state. I wasn’t sure how much BB thought about it, but last night, at bath time, he saw [...]
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    Posted: August 06, 2009, 12:23am EDT
    by acollage

  • Summer Achievements

    —Autism Watch: 2007

    These last couple of months have been a busy time. It’s summer, and whoever said ‘lazy days of summer’ didn’t have young children. There’s always something going on, even when there isn’t. We’ve had some negatives — having to increase his meds a bit instead of decreasing them, social events [...]
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    Posted: August 03, 2009, 8:53pm EDT
    by acollage

  • What’s okay to say about your child on the net?

    —Autism Watch: 2007

    If I didn’t put you to sleep with my long post of yesterday, I had an update…if you’re still interested. I promise, it’s much shorter. Little guy is happier this morning, and I think he’ll try to go outside later to play with his friend. And while I have you, I’m curious. [...]
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    Posted: July 30, 2009, 1:16pm EDT
    by acollage

  • So, what exactly is wrong with people??

    —Autism Watch: 2007

    Do you ever wonder that? There are days that really make me lose faith in people. Days where I just don’t get it, where I wonder if I’m cracked, expecting too much of people, but wondering why we’ve got so many people running around claiming to be people loving their neighbor [...]
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    Posted: July 30, 2009, 2:10am EDT
    by acollage

  • He Can’t Wear an “I Have Autism” T-shirt, Right?

    —Autism Watch: 2007

    Number of comments: 1
    My little guy’s last couple of weeks have been rough. Not sure why — it started before the aborted camp attempt, and it was after school was out, by a couple of weeks, so we can’t figure out what’s up. He’s just more edgy, more easily irritated, and he yells [...]
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    Posted: July 23, 2009, 12:50am EDT
    by acollage

  • Summer Camp, Summer Camp, Sum-sum-sum…

    —Autism Watch: 2007

    “Summer camp SUCKS!” We tried. He really tried, too…at least I think he did. It was a regular summercamp, one without special needs teachers or programming. A) Special needs camps are costly. B) Special needs camps aren’t local. C) Special needs camps don’t have enough slots. It was 20 kids BB’s age, [...]
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    Posted: July 19, 2009, 10:28pm EDT
    by acollage

  • All Autism, All The Time?

    —Autism Watch: 2007

    Number of comments: 1
    I see it a lot — total immersion, 24/7, in autism. All discussions revolve around autism, even during the precious hours where the child’s happy/sleeping/calm. Even if/when mom and dad have quiet time together, thoughts focus on autism. There’s no break, just autism: behaviors, issues, research, treatments, therapies, news articles, [...]
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    Posted: June 24, 2009, 3:27pm EDT
    by acollage

  • Tough Crowd?

    —Autism Watch: 2007

    Number of comments: 2
    I don’t know if it’s just me, but lately, I’ve been really hesitant to join or post to autism e-lists too much. I know people are having a lot of bad days — myself included — but we’re not a very forgiving crowd at times. We want everyone to understand [...]
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    Posted: June 19, 2009, 9:56pm EDT
    by acollage

  • Induced Autism

    —Autism Watch: 2007

    Number of comments: 1
    I belong to a couple of groups where I interact with a lot of other parents of autistic children. While my son would be called “high functioning,” if we used the term, we mix together because so many of the basic elements of autism are there. The difference is severity [...]
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    Posted: June 16, 2009, 5:20pm EDT
    by acollage

  • Summertime and “Mommmmmmmy, I’m bored!”

    —Autism Watch: 2007

    It has started already. School isn’t even out until Wednesday, and already he’s telling me he’s bored. The mom part of me is thinking “Bored?? BORED? You have a room full of games, toys, stuffed animals, video games/machines, TV, computer, books…..” and so on. The mom to a child on [...]
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    Posted: June 08, 2009, 5:10pm EDT
    by acollage

  • My Leg Hurts…My Hip Hurts…I’m Too Hot…and so on

    —Autism Watch: 2007

    Number of comments: 1
    Things look good, they appear fine, ds is playing quite happily and I’m enjoying the sounds he makes while he battles with 138 stuffed Pokemon animals in the diningroom. His “playroom,” if you will. The diningroom hasn’t been used in, hmmm, six months? At least? I think since our Christmas [...]
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    Posted: June 03, 2009, 12:53pm EDT
    by acollage

  • Nascar and Charities

    —Autism Watch: 2007

    Number of comments: 1
    Yep, two posts in a row. Unheard of! We are huge Nascar fans. Huge. I think I’ve shared before how it’s a family interest, with everyone having a driver and getting into it on their own level. Ds doesn’t do well for long — too loud, even with headphones — so [...]
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    Posted: June 01, 2009, 11:29am EDT
    by acollage

  • Weekend Happenings

    —Autism Watch: 2007

    Number of comments: 2
    Next week, dd graduates from 8th grade (a big deal here apparently) and she completes confirmation. Her schedule rivals that of an executive’s right now, and I’m tired of just thinking of getting her everywhere she needs to be, though I am relieved that all the shopping is completed. Now, [...]
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    Posted: June 01, 2009, 11:13am EDT
    by acollage

  • Up In Arms? Again? Expecting Too Much From Others

    —Autism Watch: 2007

    Number of comments: 1
    I like to think I stay on top of the autism community news pretty well. Sometimes I skim through articles, and sometimes, well, I have an autistic child, I don’t necessarily have the time to read something due to caring for him and the chaos that can surround us. But, [...]
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    Posted: May 29, 2009, 12:19pm EDT
    by acollage

  • Making Life Changes

    —Autism Watch: 2007

    When you’re dealing with autism, at least to me, it feels like every day is a change. It’s all different. You wake up, hope for the best, and at the end of the day, you can look back on what direction the day ended up taking…if you’re not exhausted, that [...]
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    Posted: May 27, 2009, 4:22pm EDT
    by acollage

  • Out of the Blue

    —Autism Watch: 2007

    When I picked up ds aka Barnacle Boy from school, he walked out of the gate, in his “I feel naked in this” Tony Hawk tank top and shorts, sporting a face that said he was upset but didn’t want it to be immediately obvious, only slightly obvious. On the [...]
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    Posted: May 20, 2009, 8:29pm EDT
    by acollage

  • We Left on a Jet Plane

    —Autism Watch: 2007

    Number of comments: 1
    Last week we headed back east…to the south, specifically. Rural south. Family is there, and so is almost everything I love about rural life, to the point of considering a move. Again. This time, we are really trying to make it happen. More on that later. We flew. Just four of [...]
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    Posted: May 14, 2009, 1:01pm EDT
    by acollage

  • The Unspoken Bias: Verbal Kids with Autism

    —Autism Watch: 2007

    Number of comments: 3
    I’m going to warn you — I’m going to be very candid here. I don’t need the flames if I offend, I’ve got enough already going on, so I really hope readers can understand that this is what it’s like in this part of the community and just take it [...]
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    Posted: April 27, 2009, 7:50pm EDT
    by acollage

  • Off to School Battles Continue

    —Autism Watch: 2007

    Number of comments: 1
    My alarm went off at 5:00 this morning. I couldn’t believe it; I feel like I’d just gone to sleep. It stinks to wake up in the morning and not feel anymore rested than when you went to bed. Six to seven hours of sleep should fly by comfortably, which [...]
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    Posted: April 10, 2009, 1:43pm EDT
    by acollage

  • Regression?

    —Autism Watch: 2007

    Number of comments: 1
    No clever title for this one, just a one word question from a worried mom. These last few weeks, BB’s been ‘off.’ No one thing seems to be the cause. No changes in diet, no new meds, supplements, treatments. No new activities. Something’s just off. Today, I’ll wonder every time the phone [...]
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    Posted: April 08, 2009, 10:18am EDT
    by acollage

  • Autism Gets a Haircut

    —Autism Watch: 2007

    Number of comments: 1
    A few months ago, I chronicled a visit to the dentist from a different perspective. Here we go again, since it’s the easiest way to fully describe how hellacious routine things can be. Ds, or Barnacle Boy, has always had a difficult time with haircuts. After dh developed a steady routine [...]
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    Posted: April 07, 2009, 8:04pm EDT
    by acollage

  • What’s Going On?

    —Autism Watch: 2007

    I whined yesterday about all the things going on, but once just isn’t enough. Be warned. Awards event at school yesterday, and ds was unnecessarily upset (not his own fault, imo) by a technicality. Sometimes I really wish people would understand how important these things are to ASD kids. Little upsets [...]
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    Posted: April 03, 2009, 11:06am EDT
    by acollage

  • So much to say, so little time..

    —Autism Watch: 2007

    First, today is World Autism Awareness Day. I wish there was a way to roll the word ‘advocacy’ in there, but a website url can only be so long and be remembered. Bumper stickers only so big. Headlines only hold so many characters. Check it out at: www.worldautismawarenessday.org. It isn’t [...]
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    Posted: April 02, 2009, 4:16pm EDT
    by acollage

  • What Do I Do Now?

    —Autism Watch: 2007

    Number of comments: 2
    Tomorrow’s Barnacle Boy’s MRI appointment. We’ve done the social story, we’ve talked about how he’ll be at school late, and we’ve burned the CD for him to listen to during. I think we’re set, except for the one thing I can’t plan for or prevent: a meltdown. The last couple of [...]
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    Posted: March 18, 2009, 2:51pm EDT
    by acollage

  • Mom, I Have a Headache

    —Autism Watch: 2007

    Number of comments: 2
    Yep, for reals. That’s a lot of the reason I haven’t been here much lately. I got to the point where I started to think twice about blogging about ds. What’s new to talk about? What will people want to read about? It also gets harder to discuss some things [...]
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    Posted: March 10, 2009, 4:50pm EDT
    by acollage

  • You’re Mean! Blah blah blah blah blah

    —Autism Watch: 2007

    Number of comments: 1
    That’s a recent conversation in my household. Recent, as in five minutes ago. Ds sat down to do his homework, and realized he was missing one sheet, something I could have re-created for him but he flipped out. It wouldn’t be the same, you know. He’d rather bring home another [...]
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    Posted: February 25, 2009, 6:48pm EST
    by acollage

  • Vrrroooooooooooom

    —Autism Watch: 2007

    Number of comments: 1
    That’s the pace of life lately. It just keeps speeding by! Pardon the race metaphors, we spent Weds night through Sunday night stalking drivers or watching a pre-race activity or race at Autoclubspeedway.com here in Southern California. If you’re not a fan, we live so close that you better stock your [...]
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    Posted: February 24, 2009, 8:00pm EST
    by acollage

  • “It’s good for him, you need to do it.”

    —Autism Watch: 2007

    Number of comments: 5
    How many times do we hear that from people? You know, those things that supposedly are good for our kids, things that help them mature/grow/learn or become more prepared for their future but break your heart and are really hard to do. (Isn’t being a kid supposed to be a [...]
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    Posted: February 10, 2009, 1:50pm EST
    by acollage

  • MOB: Missing on Blog

    —Autism Watch: 2007

    Number of comments: 1
    I have been MIA. Or as I prefer to call it, MOB: Missing on Blog. No one reason — no tragedies, no health issues, no major events, just constantly busy and in the leftover time, unmotivated to share more of the same old stuff. But, I am back. As I [...]
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    Posted: February 09, 2009, 6:08pm EST
    by acollage

  • Playdate Success

    —Autism Watch: 2007

    Number of comments: 1
    Before I had my fourth child, I have to admit that I laughed when I heard people setting up playdates. Play date? Play what? Really? To me, playing with other kids was a normal childhood activity, something that happened without schedule, without planning, forethought or real effort. With child number 1, [...]
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    Posted: January 18, 2009, 9:10pm EST
    by acollage

  • Mighty Ducks Autism Awareness Night

    —Autism Watch: 2007

    Number of comments: 1
    A couple of days ago, I heard about an opportunity to get tickets, courtesy of Autism Speaks, for tonight’s Anaheim Ducks game. I immediately emailed, and quickly heard back from the AS representative in charge. Ds and my husband were on the list. Score! See, this is a big deal. This [...]
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    Posted: January 09, 2009, 11:51pm EST
    by acollage

  • A Rockin’ and A Rollin’

    —Autism Watch: 2007

    Number of comments: 1
    We have a little game we play here. We call it “Guess the Earthquake Magnitude.” See, I’m deathly afraid of earthquakes, and I live in Southern California. I don’t scare easily, but there’s nothing like your house shaking side to side, things falling down, and the rolling thunder sound…accompanied by every [...]
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    Posted: January 08, 2009, 11:35pm EST
    by acollage

  • Placing Blame

    —Autism Watch: 2007

    Number of comments: 3
    Over the past few days, since a prominent actor’s son died, presumably from a seizure, I’ve seen the story everywhere. I see it on the numerous autism/seizure lists I belong to. I see it on the news, on talk shows, in emails, and on message boards, blogs, newspapers, you name [...]
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    Posted: January 06, 2009, 3:24pm EST
    by acollage

  • Barnacle Boy’s Goodnight Prayer

    —Autism Watch: 2007

    Number of comments: 5
    Dear God… Thank you for everything. I hope we have a good day tomorrow. Keep everyone safe. Keep me from having nightmares. And God, I love my life. You picked the perfect mom for me. Thank you. Amen. I don’t even need to add to this — his heartfelt prayer says it all. [...][...]
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    Posted: December 30, 2008, 12:44am EST
    by acollage

  • Christmas, Snow, Gingerbread Men and Presents

    —Autism Watch: 2007

    Number of comments: 1
    All year long, Christmas is on a kid’s mind. They talk about how many days there are left, what they want, and seeing Santa. We teach them the reason for the holiday (which, in my very outspoken opinion, is a Christian holiday and should be celebrated as such) and we [...]
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    Posted: December 30, 2008, 12:15am EST
    by acollage

  • Use the Force!

    —Autism Watch: 2007

    Number of comments: 2
    Do you? Or don’t you? And in case I’m not clear, I mean forcing your child to engage in certain social events or activities. My son was in our church’s Christmas program last night. To say he participated under duress is an understatement. We forced him. He didn’t want to stand and [...]
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    Posted: December 22, 2008, 1:58pm EST
    by acollage

  • My Son Has Autism: Will You Stop Staring Now?

    —Autism Watch: 2007

    Number of comments: 2
    This week, I tried to enroll my son in an event where I thought he’d be okay. He knew about it prior, and wasn’t totally opposed. He’d stated a couple of demands, which were do-able, and agreed to go. I knew it’d be a stretch, but he’s done it before [...]
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    Posted: December 18, 2008, 3:13pm EST
    by acollage

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